Welcome to the  New England Region of The Huntington's Disease Society of America (HDSA)

WHO WE ARE AND WHAT WE DO: The New England HDSA office provides education, advocacy, support, and care to people with Huntington's Disease and their families throughout NE. We fund research efforts and have an extensive eductation outreach program.  We help find appropriate care/services for someone with HD in your area. We provide support via professional and peer led support groups and a Regional social worker.

Our office in colloboration with offices representing other neurodegenerative diseases have been planning and advocating to state offiicals for increased home care services. Our NE HDSA Center of Excellence provides three monthly outpatient clinics and information on becoming involved in clinical trials.

Our quarterly newsletter provides information on topics such as research, resources, a fundraising event calendar, caregiving tips, and articles about how to manage various symptoms.

WHAT IS HD?

Huntington's Disease (HD) is an inherited degenerative neurological disorder that affects over 180,000 people nationwide. It is terminal and has no cure, nor is there a way to slow the process of this disease. For more information on HD click on FAQ's from the top of this home page.

WHERE IS HDSA NEW ENGLAND LOCATED?

WE HAVE A NEW ADDRESS

6 Boston Road., Suite 203 A

Chelmsford MA 01824.

HOW DO I CONTACT YOU? Phone  888-554-8102

Our phone listing will give you the extensions for staff members and support group leaders.

HOW CAN I MAKE A DONATION? Please click on How to Make a Donation found on the left side of the of this home page under latest news.

Want to get involved with HDSA in MA, VT, ME, RI, or NH? Please contact the New England Regional Director at vgoolkasian@hdsa.org or 888-554-8102 ex:13