HDSA ADVOCACY:

Help Make HD a National Priority!

Nearly everyone affected by HD has trouble obtaining disability benefits.  HDSA is leading a national campaign to address this problem, and we need your help!

A bill in Congress, HR 678, The Huntington’s Disease Parity Act of 2009 would revise the current Social Security Administration (SSA) guidelines for determining disability caused by HD.  It would also eliminate the two-year waiting period to receive Medicare benefits after a disability determination is made by SSA.  If enacted into law, HR 678 would significantly improve the lives of everyone affected by HD.

Support our grassroots HD Movement! Take 2 minutes right now to contact your Representative about HR 678.

Does your Congressman support HR 678? (Click here to see if your Rep is on board).  So far, over 60 Representatives have agreed to cosponsor HR 678, largely because their constituents have asked them to support it.  By contacting your Representative, sharing your personal story, and asking him/her to cosponsor HR 678, you can join our cause! Click here for a sample letter to send to your Congressional representative.

If your Representative is already a co-sponsor, congratulations!  Now invite your family and friends to join our effort by forwarding this message to them.

Since we need support from both houses of Congress, you can also send an email asking your two Senators to introduce the Huntington’s Disease Parity Act in the Senate.  Click here for a sample letter to send to your U.S. Senators.

Change cannot occur without your help. Persistence is key if we want change. Please join the HDSA advocacy movement today.

If you would like more information about HDSA Advocacy, HR 678, or help in scheduling a home office visit with either your Rep or Senators, please contact Jane Kogan at the HDSA national office at jkogan@hdsa.org or visit the HDSA Advocacy Page