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Tuesday, March 09, 2010
2010 Walk a Thon
The Maine Affiliate has scheduled our 2010 Walk a Thon to Raise Awareness of HD for Saturday, September 18, 2010 at Preble St. Ext., Back Bay, Portland, Maine. Registration @ 11:00am and Walk kicks off at 12:00 noon. Thank you and hope to see you there.  
Appreciation
The Maine Affiliate wants to thank each and everyone of you who participated, planned and gave up your time in this years Walk a Thon in Portland, Maine. We can not raise funds and awareness without you. If you would like to be part of the planning for the 2010 walk please give Raima Fernald a call @ (207) 283-4945. Respectfully yours The Maine Affiliate  
May 2009 is Huntington's Disease Awareness Month
Governor John E. Baldacci has proclaimed May 2009 as "HUNTINGTON'S DISEASE AWARENESS MONTH" IN THE STATE OF MAINE  

Hello! Welcome to the Maine Affiliate Web Page

WHO ARE WE? WE NEED AFFILIATE MEMBERS & WE NEED YOU! Please wont you give me a call and ask me how you can help.

WHEN AND WHERE DO WE MEET? Our group meets on the 3rd Monday of each month from 6:00 pm - 7:30 pm at Raima & Mike Fernald's Home in Saco. Please call Raima @ (207) 283-4945 if you are interested in joining the affiliate or email RaimaJean@yahoo.com. Together we can do great things for people who can't.

WHAT DO WE DO? We have held three successful Walk a Thons in Portland and also a Hoop a Thon. Part of money raised funded a Huntington's disease education day at the Barron Center in Portland. Also our May Luncheon held in Augusta in May 2007 was a great success and it brought many families together and gave them more insight as to what the affiliate does and new friendships began. Our affiliate began just a little over four years ago. We are always working on advocacy and our group needs to grow if we are to maintain a strong level of awareness in Maine. Most of us work and/or care for children and family member's with HD so it is challenging but important to find time to plan events to raise funds and awareness and to educate state officials about our needs. We know that the more help we have, the easier it is for all of us and the quicker we meet our goals. We all may be at a different place in time with HD, facing different issues, but we all share the same long term goals. Please come to our meetings and find out what we are planning. I am sure everyone can bring some ideas to help us grow.

OUR ACCOMPLISHMENTS: Recently we were involved in getting a bill passed through the Maine legislature (LD339) and it brought my son back to Maine. There are many people still that need to be brought back to Maine that fall under this bill. These people may not only have HD but there are other issues that they have that warrented them to be placed out of state under the old system. This bill will also save the Maine tax payers a lot of money. Governor Baldacci proclaims May 2009 Huntington's Awareness Month.

MAINE SUPPORT GROUP: Currently meeting at Maine Medical Center's Dana Center-Classroom #1, 22 Bramhall Street, Portland, Maine, 04102. The 1st Wednesday of each month from 6:00-7:30 pm. All interested persons should contact Cynthia Tack @ (207) 662-4514.

WHO DO I CONTACT FOR MORE INFORMATION ABOUT THE AFFILIATE? Raima Fernald is the chairperson and you can reach her at (207) 283-4945 or email to RaimaJean@yahoo.com
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